Image courtesy of Serge Bertasius Photography at FreeDigitalPhotos.net
Telling someone you have hepatitis B is almost always followed by the question, “how did you get it?”
The question can feel like an invasion of privacy or an indictment. Behind the question lurks a desire for reassurance that hepatitis B won’t happen to them, but of course it can. And that’s why we should answer and tell our story.
On a global scale, the story of hepatitis B is the story of humanity. How we and our forebears became infected results from centuries of human migrations, the transatlantic slave trade, political upheaval, poverty, re-used medical devices and ineffective public health policies. Continue reading
Posted in Advocacy, HBV Awareness, HBV discrimination, HBV Support, Hep B Awareness, Hep B Prevention, Hep B Support, Living with Hep B, Public Health, safe sex, Uncategorized
Tagged chronic HBV, chronic hepatitis B, disclosure, discrimination, Hepatitis B, story telling, testify
Hep B List “parents” Sheree Martin and Steve Bingham at a 2005 patient conference.
The hepatitis B community recently lost its much-loved advocate, resource and “mom,” Sheree Martin. She was co-owner of the Hepatits B Information and Support List from 1998 to 2011 and comforter and consultant to thousands of people around the world who live with hepatitis B.
The reach of her kindness and wisdom cannot be under-estimated. In the early days of hepatitis B, when medical treatment was misguided and stigma ran rife, Sheree nurtured a safe, online community that provided reassurance and accurate medical information. For many, it was the first time they were able to share the confusion, loneliness and frustration of living with chronic hepatitis B with people just like them. Continue reading
Posted in Adults, HBV Awareness, HBV discrimination, HBV Support, Hep B Outreach, Hep B Support, Hep B Treatment, Hepatits B Information and Support List, Living with Hep B
Tagged Advocacy, chronic HBV, chronic hepatitis B, disclosure, HBV, Hepatitis B, hepatitis B email list, Hepatits B Information and Support List, patient support
Grace Wong, associate professor of gastroenterology and hepatology at The Chinese University of Hong Kong
Catching 15 minutes of sunlight three times a week and drinking water instead of sugary drinks are two of the easiest and most natural ways to protect against liver cancer and other types of liver damage when you live with hepatitis B.
Sunlight doesn’t cure hepatitis B, but it spurs production of vitamin D, which appears to help prevent a number of cancers and other liver problems.
The liver appears to play a vital role in metabolizing vitamin D, and when you have healthy vitamin D levels, your body’s cells behave and grow normally. But when you have a vitamin D deficiency, communication between your cells breaks down, which can lead to abnormal cell growth and cancer. Continue reading
Joan M. Block, Co-Founder and Executive Director
By Joan M. Block, RN, BSN
Executive Director and Co-Founder, Hepatitis B Foundation
Tuesday, July 28, is World Hepatitis Day, which commemorates the birthday of Dr. Baruch S. Blumberg, who won the Nobel Prize in Medicine for identifying the hepatitis B virus and developing a vaccine to prevent it. This year also marks the 50th anniversary of the discovery of the hepatitis B virus – a discovery that has literally saved hundreds of millions of lives.